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Posted by / 01-Dec-2017 11:23

Baccalynnwv dating

When the doctor told me, I was so nonchalant; however, having done more research, this is rather serious, right? I am 34 and was just informed over the phone by my dr. He referred me to a neurologist, which I thought was going to take time to explain things to me and tell me what is going on.I have seen Chiari support groups, etc., so that got me rather scared. However, he spent about 20 minutes with me and told me he was sending me to a neurosurgeon.Hi we do have a member from NZ....unfortunately she lost her son....was doing some awareness over there, if u can get in touch with her, she would be the one to talk to in regards to Drs.I was diagnosed a month ago i am waiting to see the nuerologist and the ent consultant looking back over the years i think this has affected me in other ways iv had balance problems for years i have had 4 lots of surgery on my ankle that has left me disabled iv had the bones taken out of my ears which may be a conected the last year iv been feeling terrible i have had numb hands and arms in bed iv had to get up in the night and move around before the circalation comes back iv had bad pains the left side of my head that have frightened me iv had the shakes bad neck pain pressure in my head and funny feeling in my legs where i cannot stand up and a sticky feeling in my throat that makes me cough and before i was diagnosed i though what is going on with my body i was popping up new simptons every day I was diagnosed a month ago i am waiting to see the nuerologist and the ent consultant looking back over the years i think this has affected me in other ways iv had balance problems for years i have had 4 lots of surgery on my ankle that has left me disabled iv had the bones taken out of my ears which may be a conected the last year iv been feeling terrible i have had numb hands and arms in bed iv had to get up in the night and move around before the circalation comes back iv had bad pains the left side of my head that have frightened me iv had the shakes bad neck pain pressure in my head and funny feeling in my legs where i cannot stand up and a sticky feeling in my throat that makes me cough and before i was diagnosed i though what is going on with my body i was popping up new simptons every day Hi and welcome to the Chiari forum.

Chiari is the malformation of the skull that causes the skull to be too small for the cerebellum and it forces a part of it, the cerebral tonsils out of the foreman magmum which is where the spinal cord and brain stem join....

The width of the tonsils is more important than the length, which is usually the measurement given in mm's...reason the width is more important is bcuz the wider it is it may obstruct CSF flow..that is what causes the problems.... Not everyone with chiari is a surgical candidate, and not all that have surgery find relief.

Finding the right Dr is not easy, we do have a list of Drs names compiled by the members of their own drs, the list is not however a referral, u do NEED to research all Drs u consider seeing- Disorders/DOCTORS-LIST-FOR-CHIARI-SYRINGOMYELIA/show/1062?

Also, I was reading some of the posts that said that their cerebellar tonsils extended 8 or 10 mm into the foramen magnum. He showed me my brain mri, but I felt like I was in a time warp so I don't think it sunk in and I didn't hear a thing he said, due to him going so quickly through everything.

I am very confused and wanting to know what questions I should be asking the neurosurgeon?

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The best way to deal with it all, do things in moderation...ur limits and rest when u need to..up energy for when u know u will need more...avoid activities that trigger ur symptoms.

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